Well as some of you know, but many of you don’t, we have had quite the 2 weeks over here at the Douglas house.
I have not had time to return any calls or emails (unless you happened to catch me while I was nursing) so here is the long over due update…
So on Tuesday January 24th we headed to the hospital to have baby Grant. That night when talking to my mom and dad on the phone (who were staying with the kids), they mentioned that Jackson had been complaining of stomach pains.
When I got discharged from the hospital the following day Jackson was still complaining of intermittent stomach pain. So we called his pediatrician, who had Jack jump up and down to rule out appendicitis. He then posited that Jack was probably just constipated and told us to give him Milk of Magnesia to clear him up. We received the news somewhat skeptically since he had been going to the bathroom just fine, so instead opted to wait and see if it went away on its own.
That Saturday his stomach was still hurting so we went to Urgent Care where he was given a Step test and an X-ray. Again, the best guess was constipation, and directed us to give him lots of fruits and fruit juices.
Then came Thursday and still with stomach pain, so we took Jack to the pediatrician. Doctor looked him over, and said it probably was constipation, but in order to know for sure, we’d have to really treat it, so he instructed us to get him on Mira Lax and a children’s enema.
Finally on Friday with symptoms still unchanged, and with my parents insistence, we took him to the ER. Again the ER doc said it was constipation, and only after insisting on lab work did we get some answers. The blood work showed that he had an infection and inflammation.
He was immediately sent for a chest XRAY to determine if he had pneumonia—negative. Then it was time for a CT scan which involves an IV with contrast and charcoal drink. The CT scan showed 10 cm of Jackson’s small intestine very inflamed and 3X as thick as they were supposed to be.
At this point he was admitted into the hospital. The next morning (last Saturday), the doctors said this could be 1 of 3 things:
1. Acute infection
2. Chron’s disease
3. Lymphoma
It is hard to describe how terrifying this experience was. I felt like I was in this terrible nightmare. Every time another diagnostic test was performed and the MD came in to deliver the findings I felt like I couldn’t breathe. For the first time in my life I truly understood what it meant to “pray always.”
The poor little guy was poked and prodded night and day—IVs, daily blood drawls, colonoscopy, 4 biopsies and a PPD. Plus he couldn’t eat. For some reason all he wanted was a bagel. He would say “Mom, can I just look at a bagel.” Ahh, it brings tears to my eyes every time I think about it. Despite the circumstances Jackson was in great spirits. He knew all the doctors and nurses names and knew exactly what procedure was being performed and why it was being performed. He immediately won over the entire staff, being especially charming with the young cute nurses. After a particularly insightful question, the surgeon said “I can’t believe this kid is 5!”
However, the most touching part of this whole experience to me, was the outpouring of love we all received. I’m not even sure how the first person found out, but immediately members from church started showing up at the hospital to visit with Jack, bring presents to Jack, play chess with Jack, or just keep us company. His preschool teachers came with a big candy filled poster board that said “Please take good care of our friend". Angie came and took Taylor, neighbors and friends brought food, my mom took care of Grant, my Dad made countless trips back and forth to the hospital (mainly to bring my pumped breast milk from the hospital home to Grant), and countless people called, texted, and emailed. We felt surrounded by love, faith, and prayers.
Jackson was discharged on Tuesday afternoon, with still no answers. The preliminary biopsy results show no lymphoma cells. So although lymphoma is still a possibility, it is becoming more and more remote—praise God.
They promised that we would have some answers by Wednesday (the 48 hour mark), but alas, the results were inconclusive so they had to send the biopsies to California for further analysis. Those results will be back as early as tomorrow, and as late as Tuesday. This coming Tuesday (Valentines day), Jackson is also scheduled for a follow up ultrasound to see if the inflammation has gone down. So between those 2 tests and pending lab work (that can signal Chron’s, due back this Monday)—we should pretty much have a clear understanding of what is going on by Valentines day.
Whew…not sure how easy all of that was to follow, but basically we are still fervently praying that this was just some unknown monster infection. Jackson seems to be doing well. He tuckers out easily, but is eating well, pooping well, and has had no stomach pain since returning from the hospital.
Thank you for your continued prayers, we will keep you updated! And, if you have room for one more prayer, one of Grant’s infant screening tests came back abnormal (the thyroid one to be exact). It has been retested and we will get the results back tomorrow. Please pray for a false positive.
It’s amazing how fast life can change. This experience has definitely made us more sympathetic, empathetic, and brought us closer to our Heavenly Father.